Thank you for your interest in signing up for the Noonan Syndrome Foundation email list. The Noonan Syndrome Foundation is a non-profit organization dedicated to supporting, educating, advocating for those with Noonan syndrome. We would like to welcome you to the community and share with you all of the wonderful resources that the Noonan Syndrome Foundation has to offer including:

Noonan Syndrome Patient Registry

 NSF Facebook Business Page

 Teen and Youth Adult Facebook (Ages 13-20)

Adult Living with Noonan Syndrome Facebook (18+)

 Noonan Syndrome Angels: Support For Those Left Behind

It is important to connect with others who understand what you are going through and can offer support during difficult times. We encourage you to get involved by meeting other families online via our Facebook support groups.  

Email us at with any questions you may have.


Thank you for your continued support!
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